California, twins Jenna and Patrick Partington had a tight schedule taking medicine every day. This is because if he is late or forget, then suffered a rare disease that can destroy organs.
7-year-old twins from Sacramento, California was born with a rare genetic disease that causes cystinosis the amino acid cystine accumulates in every cell of the body and can damage the kidneys, eyes, liver, muscle, pancreas, brain and white blood cells.
The only treatment available is Cystagon taking the drug had to be taken every 6 hours, if you are late or forget it will cystine accumulates in the body and be like a time bomb that will destroy their organs.
“We always take the medicine every day wherever we go,” said the father, Kevin Partington (43 years) who worked in commercial real estate, as quoted from ABCNews. (more…)